How do you explain to a 6 year old that diabetes really does suck? He can't see the crappy way his brother feels when he is high or low. He hears us encouraging his brother that pod site changes "don't really hurt that much". What he does see is his brother say "no" to the food everyone else is eating and get something else. He does see his brother get a cup of milk every night right before bed. He does see his brother get banana or applesauce in bed if he is going low. Sometimes we give them both a snack, but it's not good for the 6 year old all the time. Heck, it's not good for the 3 year old, but it is necessary. He knows that diabetes is "yucky". He just doesn't know why. What he knows is that diabetes allows his brother to get sweet tarts or fruit snacks while we are walking around the zoo. He doesn't understand that his brother's body is on a constant state of upheaval.
Wednesday, June 13, 2012
Thursday, June 7, 2012
So we went to the park the other day for some family fresh air. Jackson, our 6 year old non-D child is playing in his first baseball league right now, so we took his equipment to practice. I was all excited because my best friend, who is a baseball umpire, and his wife were visiting. I thought he could help me show Jax some pointers. We threw the ball around for a few minutes and hit a few balls with his bat. Then distraction set in and he was off for a nature walk with mom. I started to pack things up when Joshua, the 3 year old type 1 said "I want to bat". I thought 'oh how cute' and threw the ball to my friend. I went to show Joshua how to stand and hold the bat, but he was already in the right stance. Must have been listening when I was showing his brother. Cool. My buddy throws the first ball and Joshua nails it over his head.
Thursday, May 31, 2012
Type 1 diabetes goes against everything our momma's taught us when we were kids. Yes, we were expected to clean our plates. However, did your mom ever make something else if you wouldn't eat what was for dinner. No! Absolutely not! That was taboo in the circle of Momhood. I know I heard "you will eat your dinner, or you can have that exact plate for breakfast. Then you can have it for lunch." Unfortunately, we don't have that luxury as parents of a type 1 child. When my child refuses to eat what we make, there are consequences. Which is better? Sticking to you principles and testing to find a blood sugar of 41, or giving in to the terrorist and having your "because I said so" lose credibility?
Thursday, May 24, 2012
I had fun in college. My poison of choice was captain Morgan's spiced rum and Pepsi. There were quite a few Friday and Saturday nights (a lot of Thursday's too) spent with a drink in my hand seeing just how stupid I could get. I'm not proud, but I had a good time. Some of the most interesting moments were those that we caught on video. We would watch back a video from the party the night before and cringe. Adult men, well on there way to earning college degrees and being professionals, were acting like brainless morons. It was common to see someone talking on the video making no sense at all. We would laugh at that point because, at that point we were all ok. It's really disturbing though, the effect that being "drunk" has on your ability to function. It is just as disturbing to see similar effects from a 3 year old.
Sunday, May 20, 2012
Today's post is about our diabetic hero. I didn't have to think long about mine. My hero has never been in the news, or made a million dollars. He has never saved a bus full of orphans from falling off a cliff. He is my hero because he changed how I thought about diabetes. He stands 3 feet tall and is the bravest guy I know. My 3 year old Joshua. He has had thousands of shots, numerous hi's and lows, and some rough experiences. He rarely complains. He loves with his entire heart. He has gotten used to the multiple devices he has to wear on a daily basis. He knows that he is different. He knows that food is not just food for him. He knows the difference between "Joshua I need you to eat this" and "Joshua, I NEED you to eat this". He knows when he is low and usually says "I want to eat"! He can eat a banana in his sleep. He is a rockstar and so well behaved. He is an inspiration and is the reason I will be at every JDRF event that I can be. They have to find a cure for him. He is amazing, and is my little boy.
Friday, May 18, 2012
What do I want people to know about diabetes. There are so many things that I wish people understood about type 1 diabetes. There is one that stands out. There is a quote that spells it out. "There are only two things people with type 1 can't eat. Poison, and cookies.....that have been made with poison." We can put anything into our mouths that we want to. We cover it with insulin. My 3 year old can eat anything that's your 3 year old can. In fact, he needs those carbs to grow. He can have cupcakes if he wants. Apple juice did not cause his diabetes. I can eat ice cream when I feel like it. No, I shouldn't eat it all the time, but neither should you! So, mind your business and don't tell me about nutrition. Otherwise, I will spend 30 minutes educating you about diabetes. I will use small words and speak slowly to make sure that you understand. You still won't get it, but I will have tried.
Thursday, May 17, 2012
My miracle device It would be normal for a diabetic, or parent of a diabetic to want the invention of a new device for the treatment of diabetes. They would want a constant glucose monitor that would seamlessly communicate with an insulin pump in real time. They would want that CGM to be accurate to within +\- 5 points (I'm reasonable, right). This glorious unit would be the size of a small bandaid, so that it would not cause undo attention. The sensors involved would only need to be replaced every six months, but would not be susceptible to infection. That is what most people would want. Me? I want a new microscopic transmitter that looks like Donald Trump and is directly injected into the pancreas. Its only function would be to tell the pancreas to do its job or it will be fired. That what I want!